IACC Town Hall Meeting Agenda

May 3, 2008
Cancer Center, University of California Davis

Time	Event
10:00	Welcome–Isaac Pessah, Director, Center for Children’s Environmental Health and Disease Prevention, UC Davis
10:05	Opening Remarks–Samuel Wilson, Acting Director, National Institute of Environmental Health Sciences (NIEHS)
10:15	Interagency Autism Coordinating Committee (IACC) Strategic Planning Process to Date–Cindy Lawler, NIEHS IACC representative
10:30	Introductory Remarks from Panel I Moderator—Michael Chez, Director, Pediatric Neurology, Sutter Neuroscience Institute, Sacramento CA Panel I (morning session): ASD Treatment: Research Priorities for Evidence-based Practices Goal: Stimulate discussion about the range of treatments being used; develop recommendations about research priorities including issues of efficacy and safety. Description: A range of conventional and alternative/complementary approaches are being used by parents and clinicians to treat children with ASD, yet many have not been studied in controlled clinical trials. How can a stronger evidence base be established to inform the treatment of individuals with ASD?
10:40	Perspectives from Panel Members (5 members, 5-10 minutes each) Sally Rogers, Professor of Psychiatry and Behavioral Sciences, M.I.N.D. Institute, UC Davis Medical Center Randi Hagerman, Professor of Pediatrics, Medical Director, M.I.N.D. Institute, UC Davis Medical Center Lynne Mielke, Founder, Developmental Spectrums East Bay Medical Clinic, Pleasanton CA Nancy Duley, parent/advocate Claire Bothwell, parent/advocate, Board Chair Emeritus, National Autism Association Lyn Redwood, IACC public representative, Cofounder, Coalition for Safe Minds
11:20	50 Minutes for Open Dialogue with Attendees
12:10	Lunch (on your own)
1:10	Introductory Remarks from Panel II Moderator–Isaac Pessah, Director, UC Davis Center for Children’s Environmental Health Panel II (early afternoon session): ASD Interventions: Beyond the Young Child Goal: Stimulate discussion about the differing needs of older children and adults with ASD and review the current state of science in this area; develop research recommendations for interventions that target this underserved population. Description: To date, autism treatment research has been focused primarily on young children, with little attention directed at treatment/interventions for older children, adolescents and adults with ASD. Community views about treatments and intervention across the lifespan are needed to develop appropriate research questions.
1:20	Perspectives from Panel Members (4 members – 5-10 minutes each) Pilar Bernal, ASD Regional Director, Kaiser Permanente, Northern California Ruth Christ Sullivan, first president, Autism Society of America; founder and first executive director, now President, Autism Services Center, Huntington WV Dena Gassner, ASD advocate, Director, Center for Understanding, Franklin TN Rick Rollens, parent, Cofounder, UC Davis M.I.N.D. Institute Lee Grossman, IACC public representative, President and Chief Executive Officer, Autism Society of America
2:00	50 Minutes for Open Dialogue with Attendees
2:50	Break
3:10	Summary of Panel I & II Recommendations–Michael Chez, Isaac Pessah
3:25	Open Dialog with IACC and Public Samuel Wilson, Acting Director, NIEHS Cindy Lawler, IACC representative, NIEHS Lyn Redwood, IACC public member Lee Grossman, IACC public member
4:25	Closing Remarks–Samuel Wilson, Acting Director, NIEHS